Action Duchenne in partnership with Professor Kate Bushby and Dr Tracy Willis at Newcastle Centre for Life have developed a new Accident and Emergency file for patients living with Duchenne and their families.

Most people living with Duchenne never need to go to an A&E unit however if your child or young person is unwell and needs to go to hospital this file contains vital information that you can pass on to the A&E team. It will enable them to have information on how to contact your own specialist consultants and your most recent test results.

Many doctors and consultants in A&E might have little specialist knowledge of Duchenne. Information in the file on recent lung function and heart checks for example are vital in emergency situations. Information on the drugs you are taking is also crucial to emergency teams. Simply fill in all your personal details and ask your own clinician to complete all the sections in the file.

Then keep the file handy and take it with you whenever you go into hospital.

The form can be got on the Action Duchenne website or can be got by clicking the link below.

http://www.actionduchenne.org/AEfile

For your own copy and so that we can send you updates please fill in the form below. Our office will send you your free copy.