Action Duchenne in partnership with Professor Kate Bushby and Dr Tracy Willis at Newcastle Centre for Life have developed a new Accident and Emergency file for patients living with Duchenne and their families.

Most people living with Duchenne never need to go to an A&E unit however if your child or young person is unwell and needs to go to hospital this file contains vital information that you can pass on to the A&E team. It will enable them to have information on how to contact your own specialist consultants and your most recent test results.

Many doctors and consultants in A&E might have little specialist knowledge of Duchenne. Information in the file on recent lung function and heart checks for example are vital in emergency situations. Information on the drugs you are taking is also crucial to emergency teams. Simply fill in all your personal details and ask your own clinician to complete all the sections in the file.

Then keep the file handy and take it with you whenever you go into hospital.

The form can be got on the Action Duchenne website or can be got by clicking the link below.

http://www.actionduchenne.org/AEfile

For your own copy and so that we can send you updates please fill in the form below. Our office will send you your free copy.

Four members of Duchenne Ireland have recently met Tanaiste and Minister for Trade and employment Mary Coughlan. It was a very productive meeting where Duchenne Ireland outlined its position and this was well recieved .

The Tanaiste gave a commitment to investigate further some of our issues and would come back to us in due course.

The Seaview Tavern, Malin Head's most northerly lounge bar will host a Night at the Races on Saturday night in aid of Duchenne Research.  There will be 11 races,  the last one being an Auction Race.  Local businesses have again come out in force to support our fundraising efforts and have sponsored races on the night.  Horses for the races have been bought and named and horses will be available to buy and bet on, on the night.  The night starts at 9pm (Malin Head time), and hopefully will gather a good crowd on what will be the last Saturday of the Festival at the Top for 2008.

A great turn out and there was a great atmosphere on the night. It was a great sucess and the event raised €750.

http://www.inishtimes.com/2008/05/14/carn-auction-raises-thousands/